You know the old saying, "when it rains it pours!" That always seems to be the case. Today we went to see Sophia's opthalmologist to follow up on the styes that keep multiplying on her eyes. We ended up dilating her eyes due to the MRI showing she has colobomas on her optic disk. We took advantage of the opportunity to check her vision and things have gotten even worse. A year ago her vision was -7 & -8. Today it's -9 & -10 with severe astigmatisms at 250 & 350. Her opthalmologist is doing experimental lasik surgery on kids with severe vision loss (like Sophai's) and developmental delays. In order to be in this experimental treatment you have to atleast be 2 years of age and less than -11. Her doc thinks she'll surpass the -11 and not be a candidate for lasik. I know 2 CdLS families that are in the treatment and it improved their kids vision drastically along with their development. There's another experimental treatment that the opthalmologist believes would be a better fit for Sophia but we will discuss that at a later date because right now her eyes are too small for the procedure. Of course they are! It's just been one of those days!

She woke up refusing to eat after not getting an overnight feed. Finally at 10:30 am she still hadnt eaten so I gave in and hooked her up to her feeding pump. By this time we were in the waiting room at Texas Childens. Somehow I spilled pink strawberry pediasure all over my white shirt and beige pants. At this same time her pager starts going off and everyones watching me clean up this mess with a pager thats buzzing off the table and Sophia starting to sceam because she wants attention. We go in and get her drops and then go into a different waiting room as we wait for the doctor. Her feed finished, I flushed her line, and began to clean everything up. I look over and she's vomiting through her nose. My reaction was to pick her up and suction her nose. It didnt take long for me to realize that now I have vomit ALL over me and her stroller. Then we go in to see the doctor and I get this bad news thrown on me. On our way home I spilled coffee all over myself and my seat. When we got home the pharmacy called to tell me her insurance is refusing to pay for the medication that her opthalmologist wants her on for the styes. Oh and the opthalmologist is booked all the way up to August for surgery. Sophia has to have surgery to take care of the styes. We've been doing the warm compress and cleaning with baby soap but the styes are multiplying.

All this with Sophia while I'm waiting on my biopsy results. Yesterday I went to the dermatologist to have three moles looked at. Well all three were suspicious and had to be removed. A few years ago I had an Atypical (precancerous) mole removed so I'm at a higher risk for developing skin cancer per the dermatologist. I dont have time to be sick! The moles had been there for awhile but I just didnt have time to go have them checked out. My concern is making sure Sophia is taken care of but what I forget is that in order to take care of her, I need to take care of myself. I'm sure they are nothing and everything will be fine. I've been told God wont give me more than I can handle so I just know things will be fine. Because having cancer is something I cant handle.