You know the old saying, "when it rains it pours!" That always seems to be the case. Today we went to see Sophia's opthalmologist to follow up on the styes that keep multiplying on her eyes. We ended up dilating her eyes due to the MRI showing she has colobomas on her optic disk. We took advantage of the opportunity to check her vision and things have gotten even worse. A year ago her vision was -7 & -8. Today it's -9 & -10 with severe astigmatisms at 250 & 350. Her opthalmologist is doing ex...
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Not one of Sophia's better days, thats for sure. She's refused to eat by mouth all day and while we have the option of feeding her through her g-tube I still have a hard time accepting that option. I was told by so many parents who's kids have a feeding tube that this will help ease things and take stress off me when she wont eat or when she's sick. I understand how that can be true and it has come in handy at times. Still, when it's a full day of non oral eating I begin to think of the what ...

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Since my last blog so much has happened. Sophia had an endoscopy that showed active reflux meaning she has a constant flow of acid in her esophagus. This acid has already began to affect her on a cellular level. We started Sophia on Carafate syrup several times a day. Carafate acts like a protective coating so that we can give her esophagus time to heal. My only concern is that at such a young age her esophagus has already been damaged.

Suddenly just two weeks after her endoscopy Sophia refus...
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It has been many months since I've last blogged. Life simply caught up with me and there just wasnt enough time in the day. Sophia is now 16 months old and over all she's in good health. This little girl, as tiny as she can be, is the strongest person I have ever known. Talk about durable! She's rolling over, doing some small babbling, loves to drink from a straw or open lid cup, plays with her toys, and her smile can light up any room. She still cant sit unattended, she enjoys standing but c...
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